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Jason Fowler's Ironman Experience
Jason's athletic achievements are not representative of the typical ITB TherapySM (Intrathecal Baclofen Therapy) experience. However, his story is inspirational. He is one extraordinary individual who was able to reach a personal goal through the help of this therapy. Medtronic, Inc. invited him to share this story candidly. As you read it, please bear in mind the athletic achievements are specific to this particular individual and are not representative of the typical ITB Therapy patient. As with all therapies, results may vary, and this therapy may not be for you. Talk to your doctor.

My Road to Kona

On October 14, 2004, I was in Kona, Hawaii and had completed the 2.4 mile swim and 106 miles of the 112 mile bike segment of the Ironman Triathlon World Championships when a race official stepped in front of me and disqualified me from the race. My disqualification was due to a failure to meet the 10 hour and 30 minute cutoff for the swim and the bike. I was angry and disappointed with my performance, and it is a race I will never forget.

After my disqualification in 2004, I made it my mission to get back to Kona and accomplish what I had set out to do; finish Ironman Hawaii. In order to race in Ironman Hawaii, a triathlete must earn a slot through a qualification race. For the handcycle division, competitors must place in the top two at one of two qualifiers, Lubbock, Texas or Antwerp Belgium. This structure ensures that qualifying for Kona is a special privilege and that eligibility is only for the elite.

Disappointments in Texas

In 2005 and 2006 I traveled to the trials in Texas and earned a third place finish both years. I missed qualifying by one position and was defeated by stronger and faster competitors. After each of the trials I was increasingly motivated to train harder and increase my competitive edge. My greatest challenge has and continues to be that my fellow handcycle athletes possess significantly more muscle function than I do. My injury prevents me from using any muscle groups below the T5/T6 level; which translates to completing a 140.6 mile race using only my arms and shoulders.  Despite this adversity, I resolved to do whatever it would take to achieve my goal of finishing Kona.

In 2007 I once again competed in the trials in Lubbock, Texas. For this race, I rode a new titanium recumbent-style handcycle that was more aerodynamic and overall more suitable for my injury level.  I had a spectacular race and cut 43 minutes off of my 6 hour race time.  This, however, was still not quite enough. I missed qualifying by 5 minutes and 10 seconds. Once again, I was disappointed that I did not qualify, but also deep down I was proud that I had made such great improvement. Not willing to accept that my quest for the year was over, a month later I traveled to Antwerp, Belgium to compete in the European trials.  I again took a monumental one hour off of my half- Ironman time only to miss qualifying by two minutes.

Recommitting for Kona

Before the trials in 2007 I was a bit worn down from all the training and sacrifices and had kicked around the idea of making it my last year of trying to qualify for Kona. After coming so close at the trials in 2007, I just couldn’t give up and I pledged myself to a whole new level of commitment.  I was confident that I had more to give to my training but I also was well aware that it was going to take an effort far beyond what I had given over the previous four years.

In the fall of 2007, I set out to enhance my equipment and developed a handcycle that would be superior to my competitors’ equipment. With the help of my dad, we developed and fabricated the first ever carbon fiber triathlon handcycle. In addition to developing new equipment I researched and developed an extremely aggressive training plan that would enable me to reach my goals.

That winter I trained with intense focus and treated every single workout with emotional intent; an intent that I hoped with enable me to reach me goal of completing Kona. As I progressed with my training, in turn my attitude also improved and soon I realized that I was not only capable of finishing Kona but winning Kona. In hindsight this shift in attitude was the one variable that gave me the edge throughout the season.

Building my new handcycle Racing with my new handcycle

2008 Trials in Texas

In June of this year, I once again traveled to the trials in Lubbock, Texas. I was confident in my ability but felt more than ever that I had something to prove to both myself and my competition. Just as I had visualized and after three years of failed attempts, I won the trials and a slot to the Ironman World Championships in Hawaii! I took 32 minutes off my time from the previous year and beat the competitors that had defeated me year after year. More importantly, though, I had elevated my game to a whole new level.

Racing in Texas   Finishing in Texas

Stay tuned, I'll be updating my web site shortly.

-Jason

                        

Read my story

This page is devoted to my experience at the Ford Ironman World Championship in Kona, Hawaii. I'll be updating it on a weekly basis, so be sure to check back.

Enjoy!
Jason

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More about the Ford Ironman World Championshiop
Map of the swim
Map of the bike
Map of the run

 

   
   

IMPORTANT SAFETY INFORMATION ON ITB THERAPY:

Please follow your doctor's instruction closely because a sudden stop of intrathecal baclofen therapy can result in serious illness (baclofen withdrawal symptoms) such as high fever, changed mental status, muscle rigidity, and in rare cases multiple organ-system failure and death. It is very important that your doctor be called right away if you experience any of the above symptoms.

It is important for you to keep your scheduled refill visits so you don't run out of medication (baclofen) and to understand the early symptoms of baclofen withdrawal. Some patients are at more risk than others for baclofen withdrawal; consult with your doctor.

People who suffer from severe spasticity resulting from cerebral palsy, multiple sclerosis, stroke, traumatic brain injury, or spinal cord injury may be a candidate for ITB Therapy. If you have spasticity due to spinal cord injury or multiple sclerosis you must first fail oral baclofen. If you have experienced a traumatic brain injury you must first wait one year after the injury to be considered for ITB Therapy. A screening test will help show if you will respond to the intrathecal baclofen. You should not receive ITB Therapy if you have an infection, are allergic to baclofen, or your body size is too small to hold the implantable pump.

The implanted pump and catheter are surgically placed beneath the skin. Surgical complications that you may experience include infection, meningitis, spinal fluid leak, paralysis, headache, swelling, bleeding, and bruising.

The most common and/or serious drug-related side effects of ITB Therapy include loose muscles, sleepiness, upset stomach, vomiting, headaches, and dizziness. Pump failure may cause overdose or underdose of intrathecal baclofen. The signs and symptoms of overdose include drowsiness, lightheadedness, respiratory depression (difficulty breathing), seizures, loss of consciousness, and coma. Once the infusion system is implanted, device complications include catheter or pump moving within the body or eroding through the skin. The catheter could leak, tear, kink, or become disconnected, resulting in underdose or no baclofen infusion. Symptoms of underdose include increase or return in spasticity, itching, low blood pressure, lightheadedness, and tingling sensation. These symptoms are often early indications of baclofen withdrawal. The pump could stop because the battery has run out or because of component failure. The pump will sound an alarm when the pump needs to be filled with baclofen, replaced or if there is a problem with the pump. Always inform any healthcare personnel that you have an implanted infusion system before any medical or diagnostic procedure such as MRI, diathermy, etc.

For more information, please read the Lioresal® Intrathecal (baclofen injection) Full Prescribing Information and the SynchroMed Infusion System Information.

Lioresal® is a registered trademark of Novartis Pharmaceuticals Corporation.
Ironman® is a registered trademark of WTC.