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Jason Fowler's Ironman Experience
Jason's athletic achievements are not representative of the typical ITB TherapySM (Intrathecal Baclofen Therapy) experience. However, his story is inspirational. He is one extraordinary individual who was able to reach a personal goal through the help of this therapy. Medtronic, Inc. invited him to share this story candidly. As you read it, please bear in mind the athletic achievements are specific to this particular individual and are not representative of the typical ITB Therapy patient. As with all therapies, results may vary, and this therapy may not be for you. Talk to your doctor.

Ironman with a Handcycle

Oct. 10, 2008

Some of you must be wondering how someone who uses a wheelchair for mobility is able to do a triathlon and how in the world does someone do 2.4 mile swim, 112 mile bike and a 26.2 mile run with just his or her arms?  For me it is primarily about a can-do attitude and the right equipment.  An average week of Ironman training for me consists of three swims totaling 8,000 meters in the pool, four handcycle training sessions totaling 150 miles, and one race chair session totaling 15 miles--all totaling 15-20 hours per week.  Add a full-time job to my training demands and my time and energy is stretched more than I can handle most days.

As a result of training for competition (which I started at age six when I raced motocross and over the last seventeen years in which I have completed 18 triathlons, over 140 road races, and 29 marathons) I have found the most important variable to be my attitude.  I have also learned over the last four years of failure to qualify for the world championships that it takes an extra effort beyond your comfort zone if you want to be the best.

Just as the quantity and quality of training is important to my being able to complete an Ironman, the equipment I utilize is equally as important.  Unfortunately, because there are a limited number of individuals that compete in triathlon in the handcycle division, there are a limited number of companies that make triathlon equipment for athletes with physical disabilities.  The result has been the need for me to develop all of my own equipment.  This presents many unique challenges including allocating time, securing financial resources, and finding people willing to take on fabricating prototypes.

How I Swim

The equipment I use for the Ironman swim includes custom plastic braces and a modified wetsuit.  The braces are made of a soft flexible plastic that slide over my legs and keep them straight in order to minimize water drag. The wetsuit is a two-piece top and bottom wetsuit that has zippers down the side (which makes it easy to remove) and its inherent buoyancy also helps to float my legs so that I am able to stroke more efficiently.

Getting ready for a training swim     Getting helped into the water for a race

Biking with my Hands

For the bike portion of the triathlon I ride a custom, carbon fiber handcycle.  The handcycle is very critical component—not only is it is the longest portion of the race, it is the most complex.  Among the things I considered when fabricating my bike were positioning, aerodynamics, safety, comfort, gearing, reliability, tires, and a hydration system.  My handcycle is the only handcycle fabricated with carbon fiber and this provides a lighter and stiffer piece of equipment.  Additionally, because carbon fiber is more flexible in terms of the shapes you can create, it is provides for a much more aerodynamic design. Aerodynamics is important in Kona, as the winds are notorious for blowing between 15-40 mph.

Racing with my handcycle  

Running Without Using my Legs

For the run portion of the race I use a racing wheelchair. My racing wheelchair is made of aircraft aluminum and is very light, which makes it easier to propel. It was precisely fabricated to fit my body size and shape. To propel my race chair I punch a rubber rim on the wheel utilizing a mitt-type glove that contains a rubber pushing surface.

My racing wheelchair  

-Jason

Read my story

This page is devoted to my experience at the Ford Ironman World Championship in Kona, Hawaii. I'll be updating it on a weekly basis, so be sure to check back.

Enjoy!
Jason

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Read other ITB Therapy Stories

More about the Ford Ironman World Championshiop
Map of the swim
Map of the bike
Map of the run

 

   
   

IMPORTANT SAFETY INFORMATION ON ITB THERAPY:

Please follow your doctor's instruction closely because a sudden stop of intrathecal baclofen therapy can result in serious illness (baclofen withdrawal symptoms) such as high fever, changed mental status, muscle rigidity, and in rare cases multiple organ-system failure and death. It is very important that your doctor be called right away if you experience any of the above symptoms.

It is important for you to keep your scheduled refill visits so you don't run out of medication (baclofen) and to understand the early symptoms of baclofen withdrawal. Some patients are at more risk than others for baclofen withdrawal; consult with your doctor.

People who suffer from severe spasticity resulting from cerebral palsy, multiple sclerosis, stroke, traumatic brain injury, or spinal cord injury may be a candidate for ITB Therapy. If you have spasticity due to spinal cord injury or multiple sclerosis you must first fail oral baclofen. If you have experienced a traumatic brain injury you must first wait one year after the injury to be considered for ITB Therapy. A screening test will help show if you will respond to the intrathecal baclofen. You should not receive ITB Therapy if you have an infection, are allergic to baclofen, or your body size is too small to hold the implantable pump.

The implanted pump and catheter are surgically placed beneath the skin. Surgical complications that you may experience include infection, meningitis, spinal fluid leak, paralysis, headache, swelling, bleeding, and bruising.

The most common and/or serious drug-related side effects of ITB Therapy include loose muscles, sleepiness, upset stomach, vomiting, headaches, and dizziness. Pump failure may cause overdose or underdose of intrathecal baclofen. The signs and symptoms of overdose include drowsiness, lightheadedness, respiratory depression (difficulty breathing), seizures, loss of consciousness, and coma. Once the infusion system is implanted, device complications include catheter or pump moving within the body or eroding through the skin. The catheter could leak, tear, kink, or become disconnected, resulting in underdose or no baclofen infusion. Symptoms of underdose include increase or return in spasticity, itching, low blood pressure, lightheadedness, and tingling sensation. These symptoms are often early indications of baclofen withdrawal. The pump could stop because the battery has run out or because of component failure. The pump will sound an alarm when the pump needs to be filled with baclofen, replaced or if there is a problem with the pump. Always inform any healthcare personnel that you have an implanted infusion system before any medical or diagnostic procedure such as MRI, diathermy, etc.

For more information, please read the Lioresal® Intrathecal (baclofen injection) Full Prescribing Information and the SynchroMed Infusion System Information.

Lioresal® is a registered trademark of Novartis Pharmaceuticals Corporation.
Ironman® is a registered trademark of WTC.