Living With the Therapy
The following guidelines for deep brain stimulation (DBS) therapy for dystonia will help you get the most from your DBS therapy.
After your surgery, your doctor or nurse will give you instructions about care at home. These instructions often include information about medications, the healing process after surgery, and when to return to your daily activities.
Making a full recovery from surgery is a process that can take several weeks. During the healing process, you will feel some discomfort at the incision sites on your scalp, and at the implant site(s) for the neurostimulator(s). If you notice unusual symptoms, contact your doctor.
Always follow your doctor’s instructions for taking medication.
During your recovery, follow your doctor’s instructions about activities that include bending your neck, raising your arms over your shoulders, or strenuous activities like lifting heavy objects.
Be careful when participating in activities that may result in accidents or falls. Sudden jerky movements may cause the lead(s) in your brain to move. Falls may damage parts of the implanted DBS system. Surgery may be needed to repair or replace any damaged DBS system parts.
Call your doctor if any of the following situations occur:
There may be changes in the level of your symptom control over time.
These changes may include:
In many cases, your clinician can correct these changes by reprogramming your DBS system. However, surgery may be required to reposition or replace the lead, replace the system, or remove the system.
Because your disease changes with time, your condition may improve, may worsen, or may remain unchanged with stimulation.
This website is intended to be educational and is not to be used as a diagnostic tool. It is not intended to replace the information provided to you by your healthcare providers and does not constitute medical advice. The information may not be directly applicable for your individual clinical circumstance. Please talk with your doctor about diagnosis and treatment information.