
patient stories
a typical patient profile
Medical condition
- Suffered since having her second child 12 years ago
- Vomiting and debilitating pain during menstruation
- Developed varices on her buttocks and legs
- Severe pain during sex
- Rx HRT, pain killers, antidepressants
Social and Personal
- No longer wants to have physical relationship
- Struggles to cope at work being on her feet
- Embarrassed to socialize
- Husband struggling to understand
- Heavy menstruation so unable to go out
Feelings and Thoughts
- “My legs look horrible”
- “I don’t want to go to the beach”
- “I don’t want people to look at me"
- “I don’t want to have sex, it’s painful”
- “Is this my life now”
Demographics
- 42 years old
- Married with 3 children (15, 12, 8)
- Part-time employment
- Husband in full-time
Environment
- Used to cycle with the children
- Weekend house by the beach
Family Support
- Family all live close by
- Parents help when chronic pelvic pain is at it’s worse
patient stories
Susan

“There is a complete lack of knowledge by GPs about this syndrome.
Think gynaecologists need to take a much bigger role in referring people over to interventional radiologists.
I would have been treated much quicker if they had.”
Lucy

"I felt quite isolated as everything that I've read has pointed towards women with several kids; I'm still a teenager and have had no children!”
Heather

“Having no children and being young led me to being constantly dismissed.”
- Susan
- Lucy
- Heather