Diagnosed with cerebral palsy and spastic quadriplegia as an infant, Kyle has experienced the effects of spasticity his entire life.
He began taking oral medications for spasticity three times a day when he was 11 months old. Early on, his parents knew the medications would be a short-term solution. Kyle’s medications would have a positive effect shortly after they were taken, but would wear off, leaving him in severe pain and discomfort.
Kyle’s parents worried about the long-term effects of a lifetime of high daily doses of oral medication. As he grew, lights and sounds regularly triggered Kyle’s severe spasticity and caused him to get upset, sweat, and forcefully push against his wheelchair.
Getting a baclofen pump
Kyle’s family worked with a team of professionals to find the right treatment. When he was 12 years old, they decided to try ITB Therapy.
Kyle had a successful screening test, and went on to have the pump and catheter placed.
Until he had the pump placed in 2009, Kyle had been taking oral baclofen. After the surgery, his oral dosage was reduced and his intrathecal dosage was increased in order to get him off the oral drug. During this process, Kyle experienced withdrawal from his oral medication. His health care team increased the intrathecal dosage to correct the problem.
Kyle did not experience any other complications or side effects from treatment with a baclofen pump. However, some people do experience surgical complications, side effects of the drug, or both. There are risks associated with treatment with a baclofen pump. Please refers to section side effects and risks.
To manage the spasticity in his arms, Kyle continues to take oral medications for his spasticity, but at about half the dose he was taking before receiving the pump. His medical professionals and family hope to eventually taper him off of all oral spasticity medications.
After starting ITB Therapy, Kyle didn’t have to fight spasticity in his muscles in order to comfortably sit in a chair for long periods, and his mother said he had more control over his legs. Eight months after receiving the pump, he went skiing for the first time. An adapted bi-ski with a small chair provided Kyle with one of the most memorable experiences of his life... so far.
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Results may vary from patient to patient.
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