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Getting the Therapy
With deep brain stimulation (DBS) therapy, the DBS system is surgically implanted. Your hospital stay is generally brief, and after your body has healed, a clinician programs the stimulator. It can be adjusted to achieve the best symptom control for you.
DBS is not right for everyone with dystonia. Only a doctor experienced with DBS can determine if you are a candidate.
With DBS therapy, a team consisting of a neurologist, a neurosurgeon, and nurses works together to help you manage your treatment for dystonia.
People who receive the DBS system usually describe the surgical procedure as demanding and exhausting. Your doctor will be able to answer any questions you may have about the procedure.
Deep brain stimulation (DBS) therapy for dystonia is not right for everyone. Only a doctor experienced with DBS can determine if you are a candidate.
You may be a candidate for DBS if:
If your doctor determines you are a candidate for DBS, you will need to make the final decision about whether or not to choose the treatment.
Here are some suggestions to help you decide whether DBS is right for you:
Before you meet with your doctor, think about what you hope to learn. Prepare questions, and be ready to provide information about your medical history.
You'll work with a variety of healthcare professionals as you determine your suitability for deep brain stimulation therapy.
Part of the healthcare team's job is to make sure you're comfortable and satisfied with your treatment. Always ask for clarification if there's something you don't understand. Also, make sure to communicate any concerns you may have regarding the procedure or follow-up treatment.
Remember: You'll get the best results from your treatment by actively participating in discussions with the members of your healthcare team.
People who receive a DBS system usually describe the surgical procedure as demanding and exhausting. There may be some discomfort during the initial stages of the surgery. However, the placement of the leads is not painful (your brain is not sensitive to pain). Your doctor will be able to answer any questions you may have about the procedure.
The evening before surgery, you may be instructed to stop taking all of your medications. This step lets your healthcare team best determine the effect of DBS therapy on your symptoms.
You will be admitted to the hospital either the night before or the morning of your surgery. You may have your head shaved prior to surgery to help prevent infection.
The duration of the procedure and the specific steps involved can vary. The surgery typically lasts 4 to 8 hours.
Your surgery may consist of the following steps:
Once your body has healed following the implant procedure, your clinician will program the neurostimulator to start sending the electrical pulses that help control your symptoms. He or she will adjust your stimulation wirelessly. The process is non-invasive and may take a few hours to complete.
It may take several visits to adjust the stimulation before the best settings for you are determined. Over time as the disease progresses, further adjustments may be necessary.
Information on this site should not be used as a substitute for talking with your doctor. Always talk with your doctor about diagnosis and treatment information.