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When to Call Your Doctor

Dystonia

Call your doctor if any of the following situations occur:

  • You experience pain, redness, or swelling along the scalp, neck, or chest where the stimulation system is implanted
  • You are not getting relief from your symptoms even though the neurostimulator is turned on
  • You feel uncomfortable or painful sensations during stimulation (turn off the neurostimulator before calling your doctor)
  • You cannot turn the neurostimulator off (or on)
  • You experience unexpected changes in your symptoms
  • You experience any unusual symptoms that you think may be caused by electromagnetic interference (for example, from theft detectors or airport security)
  • You lose your patient programmer

Taking Action

  • Be sure to let all medical personnel know that you have an implanted DBS system, and tell them where it is located. If they have any questions, they should contact the Medtronic DBS Helpline on +44(0) 1923 205101.
  • If you experience any unusual symptoms that you think may be related to your neurostimulator, contact your doctor.
  • Attend all follow-up appointments.

Symptom Control

There may be changes in the level of your symptom control over time.

These changes may include:

  • Reduced symptom relief
  • No symptom relief
  • Loss of effective stimulation

In many cases, your clinician can correct these changes by reprogramming your DBS system. However, surgery may be required to reposition or replace the lead, replace the system, or remove the system.

Because your disease changes with time, your condition may improve, may worsen, or may remain unchanged with stimulation.

When the neurostimulator is turned off, your symptoms will return. Some symptoms return quickly. Other symptoms may take longer to return.

Next: Programming

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